We are pleased to announce that Skinive has become an information partner of DEBRA Russia, which is part of the international organization DEBRA International and provides comprehensive assistance to butterfly children diagnosed with epidermolysis bullosa (EB) in Russia and the CIS.
We invite you to the DEBRA Annual International Congress 2021. The Congress will take place online from September 16 to 19, 2021. It is important for us that as many people as possible have access to EB expertise.
We will be glad to see doctors and medical workers, as well as patients at this event. Together, we can bring more attention to EB and help patients see new opportunities.
What awaits you at the DEBRA Congress 2021:
- Scientific and practical program;
- Medical seminars, round tables and sessions for healthcare professionals and patients;
- Access to medical and scientific electronic posters;
- Submission of abstracts;
- Participant certificate;
- Electronic gift.
Special offer for our Skinive users and partners: skinive30 promo code for a 30% discount. There are also group discounts up to 60%. Admission is free for patients.
Registration link >> https://debracongress2021.ru/register
Who are butterfly children?
Behind the romantic name lies a serious illness – epidermolysis bullosa. Children suffering from this ailment are called butterfly children, comparing the fragility of their skin to the fragility of a butterfly’s wing.
Epidermolysis bullosa (EB) is a genetic skin disorder in which there is a breakdown in genes that regulate proteins that hold the layers of skin, epidermis, and dermis together.
What is the International DEBRA Congress?
This groundbreaking event will bring together all the world’s knowledge of EB research, clinical treatment and the EB community.
This pooling of the latest knowledge from key stakeholders will not only provide guidance for EB professionals, but will also help develop strategies for the research, regulatory, financial and medical communities.
Which doctors help patients with EB?
Epidermolysis bullosa is a multidisciplinary disease that affects more than just the skin. This means that not only a dermatologist is involved in the treatment.
Here is a list of doctors that a patient with EB should contact for proper therapy and improve the quality of life: pediatrician, geneticist, gastroenterologist, ophthalmologist, cardiologist, nutritionist, otolaryngologist, dentist, surgeon, plastic surgeon, orthopedist, oncologist, psychologist, rehabilitologist.
Who should join?
1. Medical professionals.
Our goal is to bring together all the world’s knowledge of epidermolysis bullosa (EB) research and clinical management.
Participation in the Congress is a unique networking opportunity for professionals from all over the world. You will be able to share your experience and get the latest information in the field of EB. And your knowledge will help patients living with EB around the world get advice on care and treatment
2. Patients
Our mission is to improve the lives of people living with epidermolysis bullosa (EB).
DEBRA International Congress 2021 will bring together experts in EB research, clinical treatment and the EB community. And they will all come together to exchange research results and their experiences. Thus, all patients will have access to information about the latest research and international experience in clinical treatment. Each patient will have the opportunity to ask questions and get answers to medical professionals.
It is important for us that as many patients as possible have access to the knowledge of EB and the opportunity to exchange experiences from anywhere in the world. As a patient, you can pre-register on our website absolutely free!
Skinive team and organizers of the DEBRA Congress 2021